If there is anything good about Parkinson’s it is the PD community and the people I met. It is clear that PD afflicts each of us differently. Add your best and worst in the comments section below and I will publish them.
The worst thing about PD is that it robbed me of the person I had lived all those years to become and the life I was preparing myself to lead. (Peter)
The best thing about PD is the Parkinson’s community and the people I met. (Peter) The worst thing about PD is its unpredictability. I don’t know how I will be each morning. Will I be ok or not able to get out of bed. (Ernie)
The best thing about PD is the people I met. (Ernie) The worst thing about PD is distinguishing between what one fears late at night and what one judges to be true after due reflection. Maybe I haven't seen what is worst yet. There is a line in King Lear, “The worst is not/ So long as we can say/ "This is the worst.” (Dana) The best thing about PD is made me stop doing unrealistic projects and made me focus more on doing the things I can while I can.” (Dana) The worst thing about PD is being aware of my vulnerability and mortality. (Susan) The best thing about PD is knowing to do what is most important because of my limitations. (Mike) The worst thing about PD is the losses. Loss of control of my hands, legs, driving capability, and all the other symptoms of PD. It's a slow, relentless series of losses - one after another. (Sarah) The best thing about PD is the support, understanding and fellowship of the people with Parkinson's that I met. (Sarah) The worst thing about PD is the unpredictability of what condition I'll be in in the future - the fear of the unknown. (Sarah) The best thing about PD is I can blame PD instead of old age for my achy joints, bad memory, etc. (Sarah) The worst thing about PD is the progressive loss of my neurons. (Steve) The worst thing about PD is internal…gut problems, constipation stomach distress. (Anon) The best thing about PD is my connections with the people I love have gotten stronger, and I am exploring things i've never done before like singing. (Anon) The worst thing about PD is finding a medical team that listens to me, works with me as an individual, and takes my concerns into consideration. I also hate the reminders of the inevitability of decline - as though there is nothing I can do about it. (Joanna) The best thing about PD is the people I have met and bringing dance front and center into my life. (Joanna) The worst thing about PD is being at the mercy of a medical system that mis medicated me which resulted in nervous system damage. (Steve) The worst thing about PD is trying to keep up with all the information about what can be helpful. I am so overwhelmed with directions to go in that I am now in a freeze mode not quite sure what to incorporate into my care plan. (Joanna) The best thing about PD is is that it is a teacher that can’t be ignored, It taught me to be more loving to the people I care about, to do more of the things I enjoy, to get over some of my sillier hangups, and to not sweat the little things. (Peter) The worst thing about PD is the aches and pains, but some of that just comes with age. (Dana)
3 comments:
So poignant and interesting to read. Glad so many of the respondents have found friendship and fellowship in the PD community. RB
The best thing about loving someone with PD is forming a new bond and type of relationship with them. The worst thing is knowing the old relationship can never be revisited and having regrets.
The best thing about PD is I now know what was happening to me is caused by the PD. The tremors and falling and balance issues.
The worst thing about PD is I am so young and my family does not understand. Esspecially my husband refuses to accept that I am not the same person. That I need help and cannot do everything.
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